One the third floor in the hospital there's a Ronald McDonald Family room with couches, recliners, and snacks. I go there at least once a day to get out of our room, clear my brain for a few minutes, and grab a free snack. I met a precious 6-month old baby girl who is very yellow. She's waiting on a liver transplant. She has to stay in the hospital until she gets a new liver... or doesn't. That put some things in perspective in the most blunt, painful way possible! Seizures are awful! But at least Philippe isn't waiting on a liver...
On Friday we'll meet with another doctor that does metabolic and DNA tests and they'll collaborate to decide what tests we'll do on Philippe so we can determine if seizures might be in the future for our other children.
No comments:
Post a Comment